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Slide Presentation of the 2007 Annual Meeting of AHRQ

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National Consumer Principles (continued)

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  • Systems for e-health data exchange must protect the integrity, security, privacy and confidentiality of an individual's information
  • Governance and administration of e-health networks should be transparent and publicly accountable

Notes:

Systems for e-health data exchange must protect the integrity, security, privacy and confidentiality of an individual's information

  • Reasonable safeguards developed at front end & just follow the information as it is accessed or transferred
  • Notification in a timely manner if breach or privacy violation
  • Meaningful legal and financial remedies to address any security breaches or privacy violations
  • Federal privacy standards that restrict the use and disclosure of personally identifiable health information should apply to all entities engaged in HIE

The governance and administration of e-health networks should be transparent and publicly accountable

  • Independent bodies, accountable to the public, should oversee electronic health information sharing
  • Consumers should have equal footing with other stakeholders

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