AHRQ releases new and improved Registries for Evaluating Patient Outcomes
Research Activities, November 2010, No. 363
The Agency for Healthcare Research and Quality (AHRQ) Effective Health Care program released the second edition of Registries for Evaluating Patient Outcomes: A User's Guide available at http://www.effectivehealthcare.ahrq.gov. Originally published in 2007, the handbook has been completely updated with four new sections addressing emerging topics in registry science:
- "When to Stop a Registry."
- "Linking Registry Data."
- "Technical and Legal Considerations."
- "Interfacing Registries and Electronic Health Records."
Important updates to existing chapters include: "Principles of Registry Ethics, Data Ownership, and Privacy," which now addresses recent developments affecting the privacy rule and discusses new laws including the HITECH Act and the Genetic Nondiscrimination Act. The updated guide contains 38 case studies examining real challenges in the development, use, and analysis of registries. To order printed copies of the handbook, call 1-800-358-9295.
To learn more about the AHRQ Effective Health Care Program, visit the Effective Health Care Program Web site.