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National Healthcare Disparities Report, 2004

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Individuals With Special Health Care Needs

Children with special health care needs without family-centered care

Measure Source

Centers for Disease Control and Prevention, National Center for Health Statistics (NCHS), National Survey of Children with Special Health Care Needs.

Tables

237 Percent of children with special health care needs without family-centered care, United States, 2002, by

  • Race
  • Ethnicity
  • Household income

Data Source

Centers for Disease Control and Prevention, National Center for Health Statistics (NCHS), National Survey of Children with Special Health Care Needs.

Denominator

Number of children with special health care needs.

Numerator

Number of children with special health care needs without family-centered care.

Comments

Family centered care is a composite of 5 questions asked: In the past 12 months / since (his/her) birth [if younger than 12 months], how often did (sample child)'s doctors and other health care providers spend enough time with (him/her)? How often did (sample child)'s doctors and other health care providers listen carefully to you? When (sample child) is seen by doctors and other health care providers, how often are they sensitive to your family's values and customs? In the past 12 months, how often did you get the specific information you needed from (sample child)'s doctors and other health care providers? How often did (sample child)'s doctors or other health care providers help you feel like a partner in (his/her) care? Response options for each question were never; sometimes; usually; always. If all 5 were answered either usually or always, the variable was coded as family centered; if any of the 5 were answered otherwise, the variable was coded as not family centered.

 

 

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