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Table 1. Alternative Estimates of the Proportion of the Noninstitutionalized Population with a Special Health Care Need

People who experience consequences for an ongoing health condition (based on national and Statewide samples using FACCT screeners)

Children: 17-22% (under age 13), 6-8 million
Adults: 49% (over 18), 95 million

People with a diagnosis appearing in administrative data (based on 3M Clinical Risk Groups System)

Children: 7-11%, (under 18)
Adults: Approximately 35%, (65% for Medicare only—24% of these are more serious conditions)

People with a disability that has any functional impact

Children, 1-18 years (NHIS): 5-7%
Children, 6-14 years (SIPP): 12.7%
Young adults, 15-21 years (SIPP): 12.1%
Adults, 18+ years (NHIS): 15.1%
Adults, 22+ years (SIPP): 25.6%

People with a disability that has a serious functional Impact

Children, 6-14 years (SIPP): 1.9%
Young adults, 15-21 years (SIPP): 3.2%
Adults, 18+ years (NHIS): 10.3%
Adults, 22+ years (SIPP): 13.8%

Sources: FACCT Screener Data: Bethell and Read, 2000; Bethell and Lansky, 2000, FACCTCThe Foundation for Accountability; 3M CRG Data: John Muldoon, National Association of Children's Hospitals and Related Institutions (NACHRI), 2000; Estimates for people with functional impact: National Health Interview Survey (NHIS) results—1994, National Center for Health Statistics; Survey of Income and Program Participation (SIPP) results—1994-95, McNeil, J, 1997—US Department of Commerce, Bureau of the Census.

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