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AHRQ and AcademyHealth to sponsor workshops for researchers on new privacy rules

On April 14, 2003, Federal regulations will go into effect that limit to whom health plans, providers, and clearinghouses can release identifiable health information. Without an understanding of the regulation, many health services researchers will see their ability to obtain and use health information curtailed.

The Agency for Healthcare Research and Quality and AcademyHealth are presenting workshops to educate health services researchers about their responsibilities under the new rules.

For your convenience, the 1-day workshop, "Playing By New Rules: Privacy and Health Services Research," will be held in two locations:

Wednesday, March 19, 2003
8:00 a.m.-5:00 p.m.
Sir Francis Drake Hotel
San Francisco, CA

Tuesday, April 29, 2003
8:00 a.m.-5:00 p.m.
Hilton Washington, Dulles Airport
Washington, DC

The workshop will address critical questions such as:

  • What meets the legal requirements for personally identifiable health information?
  • Why does de-identified information need to be protected?
  • What types of linkages are allowed between data and identifiers?
  • What is the new limited data set that researchers will have access to and how can access be achieved?
  • How can researchers use data while protecting the public?
  • What are the consequences of failing to protect this information?
  • What entities are covered by the regulation and how is their identifiable data acquired?

Learning will be facilitated through lecturers, case studies, and breakout sessions. Faculty include:

Mary Durham, Ph.D.
Kaiser Foundation Hospitals
Center for Health Research

J. Michael Fitzmaurice, Ph.D.
Senior Science Advisor for Information Technology

Jennifer Kulynych, J.D.
Ropes & Gray

Hal Luft, Ph.D.
Director, Institute for Health Policy Studies
University of California, San Francisco

Carol Stocks, R.N., M.H.S.A.
Health Services Administrator

Elliot Stone
Executive Director and CEO
Massachusetts Health Data Consortium

For more information or to register, go to or call (202) 292-6700.

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